Join Us and Bee a Fly on the Wall at ASH

Robin Tuohy |

Hi Everyone! Thanks for coming to the IMF’s ASH 2018 website. The support group leaders joining us this year are patients and caregivers who will be sharing their experience with you throughout the meetings. Once again, we’re fortunate to have with us, Teresa Miceli, BSN, OCN, registered nurse at Mayo Clinic and a member of the IMF’s Nurse Leadership Board. Teresa will lead us through our working meetings to better understand terminology and lead us in active discussions.

Dr. Durie, Debbie Birns (IMF Medical Editor), and I have been preparing the leaders daily schedule, incorporating selected oral and poster abstracts and special events. The leaders arrive on Thursday, November 29, to ensure they are rested up for the long days ahead of them. This group of leaders will be blogging, vlogging (video blog), and tweeting throughout the entire ASH program and will post their final ASH 2018 blog once they get back home to digest and summarize their experience.

I personally hope that you’ll click this ASH link each day so you can bee like a fly on the wall at ASH and hear from myeloma patients their perspective and what they are excited about. Each day, these support group leaders and myeloma patients will do their best to navigate the multiple programs and simultaneous sessions! We’ll need to split up to cover everything and weave our way through the crowded halls of ASH, making our paths to the next session as quickly and directly as possible.

Friday, leaders start out with an Orientation Breakfast and are quickly whisked off to their first event, the IMF’s Satellite Symposium: “New Strategies for Multiple Myeloma Care: Next Steps for the Future.”

This program is one of my favorites; it’s where we can hear case discussions and point/counterpoint opinions on everything from accurately diagnosing myeloma and starting treatment, to individualized approaches, transplant, consolidation, maintenance, the role of minimal residual disease (MRD), and so much more. I’m sure the leaders will be tweeting and blogging on this key program so stay tuned for that!

The IMF was the first organization to bring myeloma patients to ASH back in 2006 because they understand the value of hearing first-hand what our futures may hold for us. They these attendess have the opportunity to share that from a peer-to-peer perspective!

I thank each leader for taking the time out of their busy lives to prepare for, to focus and learn, and to then share what they are excited about and hopeful for with all of you. I encourage you to read their blogs and watch their videos. Also, embrace technology and follow them on Twitter too!  It’s easy and I’ve provided you with this link to get started and learn about Twitter.

Decode Genetics, Iceland, Robin Tuohy, Michael Tuohy, Susie Durie

Robin and Michael Tuohy with IMF President & Co-Founder Susie Durie at the DeCode Genetics facility in Iceland, where the iStopMM study is taking place.

So in closing for my Pre-ASH blog, I encourage you to bee like a fly on the wall with real-time information direct from ASH from people just like you: myeloma patients and caregivers.

I’ll be reporting on the leader’s daily activities and also what I’m excited about as an 18-year myeloma caregiver. Also, since I just returned from Iceland to hear updates on the IMF’s iStopMM research initiative, I will also focus on any oral/poster presentations on this as well.

Thanks for reading, much more to come!


2 Responses to "Join Us and Bee a Fly on the Wall at ASH"
  1. Jerry E Walton says:

    You’re The World’s Exceptionally Effective Tuohy!! (i.e., the TWEET!)
    P.S. – The other Tuohy’s exceptional as well! Looking forward to your blog.

  2. James Backus says:

    Wish I was there!

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